(As documented in the personal journal of Linda M. Hill from October 14, 2015 to January 17, 2019)
Mike Fitzpatrick, an incredible 19 year pancreatic cancer survivor from Florida, shares all the reasons why he came up for National Pancreatic Cancer Advocacy Day.
Shiloh Marlar of Arkansas briefly discusses how losing her father to pancreatic cancer has inspired her to return to National Advocacy Day for the second straight year.
Monica-Amit Mishra of the Detroit Affiliate of the Pancreatic Cancer Action Network states why she came to Washington D.C. for Advocacy Day.
Bill Cunningham from Wisconsin shares his story as a two-year pancreatic cancer survivor at this year’s National Pancreatic Cancer Advocacy Day in Washington D.C.
Jeanne Lipshetz, Affiliate Chair of the Milwaukee Affiliate of the Pancreatic Cancer Action Network, and Steve Lipshetz, Media Relations Chair, share what motivates them to come to D.C. for Advocacy Day to fight for pancreatic cancer funding and awareness.
Darrell Shoop just needs ten words to explain why he came all the way from Wasilla, Alaska to Washington D.C. for National Pancreatic Cancer Advocacy Day.
(Be sure to continue checking this blog in the coming days for more videos from participants in this year’s National Pancreatic Cancer Advocacy Day sharing their stories and explaining why they are here.)
On May 11, 2019, the annual Dylan Flinchum Dinosaur Stomp was held at Maxim Glen Park in Hopatcong, New Jersey. Dylan Flinchum is a ten year old boy with MLD—Metachromatic Leukodystrophy. Dylan and his parents, Michael and Melissa, have supported Bruce throughout his journey with pancreatic cancer. And Bruce has supported them as Dylan fights a terminal disease. When Bruce was diagnosed with pancreatic cancer three and a half years ago, his first thought wasn’t of himself or what lies ahead. His first thought was of Dylan. He told me that whatever he was about to face couldn’t be as bad as what Dylan goes through on a daily basis. Bruce’s bond with Dylan grew and strengthened after his PC diagnosis. He continually looked to Dylan for strength, hope, and inspiration. Dylan became Bruce’s “Super Hero,” a term Bruce always used to describe Dylan. Whenever Bruce had a setback, he’d always say the same thing: “This is nothing compared to what Dylan goes through.” Bruce lost his battle with cancer in January. But Dylan’s fight goes on. For those of you suffering with long term illnesses, if you need your own little Super Hero to inspire you, please go to the Dylan Flinchum Rock On Foundation: DylanRockOn.org
Michael Weinstein, a 13-year pancreatic survivor and PANCAN volunteer, emphasizes the need for continued involvement and advocacy related to pancreatic cancer by sharing some sobering statistics about the disease.
Bert Baron, host of this past Sunday’s Purple Light Event at Camp Harmony in Warren, NJ, and DJ at WTCT 1450am, advises those affected by pancreatic cancer to contact the Pancreatic Cancer Action Network for further information and assistance.
Tracey Early, who became a pancreatic cancer advocate and fund raiser after losing her sister to the disease, discusses the rapidly growing number of those affected by pancreatic cancer.